Skip to main content

You Tube videos

Here is a link to my youtube channel in which I post videos about living with Cystic Fibrosis
www.youtube.com/hollyrosanna

Ling with Cystic Fibrosis


Cystic Fibrosis and Universtity

Cystic Fibrosis hospital admission


Living with cystic fibrosis 2


Living with cystic fibrosis 3


Living with cystic fibrosis 4 life on the transplant list


Living with cystic fibrosis 5 false alarm for transplant


A documentary made by Emily and Jess as part of their university project 'the decision to live'

Another documentary made in 2013 in memory of Emma Jane Kingston by students at Leeds Met film school.

Comments

  1. Hi, How are you? I found your blog via youtube:) , I just saw a video of a little girls battle with this and then I saw your video next to it and remember that I think I saw one of yours a few years ago... How's everything?:) http://idathessa.blogg.se

    ReplyDelete

Post a Comment

Popular posts from this blog

New beginnings...

Hello, it's been a while, 18 months or there about since I last posted to this blog.

I don't have any singular reason for the long break there were numerous reasons. I wanted to reclaim some privacy that I felt I had lost through blogging so openly and regularly about my life, I also got caught up in the busy nature of adult life and I never seemed to get the same opportunities to sit and write a blog, if I blog I want to do it properly, not a half hearted attempt. But none of that matters now  because I'm back, with fresh eyes and new ideas on what I want this blog to be, both for myself and you guys reading.

First of all I would like to reassure the many people that have followed my story for the last 6 years that I am alive and well. I am now 2 years, 1 and a half months post transplant which is a fact that boggles my mind, I still have to regularly pinch myself to check it is true and not a figment of my imagination! I still have to attend hospital appointments to moni…

Spring Smiles

Hello,

Spring really has sprung and the sun is shining as I sit and write this in my garden. But the sun isn't the only thing thats put a smile on my face the last week or so...
Last weekend I jumped on a train to London for a long weekend. Going to London always gives me a buzz with the promise of spontaneity and fun filled times. The initial reason for this impromptu visit to the big smoke was a workshop on Saturday morning at the BBC called 'Get in' designed to enlighten people like myself who are interested in a job in the media about the career/training opportunities available within the BBC. Just being in the BBC New Broadcasting house in central London filled me with awe, the BBC is an establishment that has always been a part of my life, from growing up watching CBBC as a child to listening to BBC Radio 1 as a young adult and watching shows like The Great British Bake Off which captivated not just baking enthusiasts but an entire nation. So to be in the building th…

Sleeping beauty, or not!

After being re-ventilated on the Saturday morning 28th February, the doctors had a meeting with my parents explaining the seriousness of my situation and even suggested to them to call my brother who was working on a ski season in Austria and tell him to get the first flight to newcastle because of the high chance I wasn't going to survive. They were told my lungs were completely infected with pseudomonas along with a secondary infection of pneumonia and on top of that I had septicaemia. My X-ray showed my lungs were a total white out, my feet and hands were purple and frozen to the touch, my mum said I was like a corpse. Along with my struggling lungs my heart was at full stretch, I had now had a dangerously hight heart rate of over 170bpm for over 24hours. My mum, dad and sister took it in turns to be by my bedside constantly, holding my hand and talking to me, willing me to get better.
By Sunday morning 1st March, things had took a turn for the worst, my heart rate was still ex…