|Waiting for my friends to arrive|
On Sunday morning I was greeted with John who although I only had look after me 3 times in total, was my one of my favourite nurses! This made being woken up at 8am for a blood test slightly more tolerable especially as he had my tea and toast ready and waiting for as soon as the doctor had finished! I'd barely swallowed my last mouthful of toast when Dave my porter arrived, he was pleased to see me back down on the ward and hoped I stayed down now! He took me to have a chest x-ray where I got to see the lovely Diane who worked on reception and always treated me like a princess and gave me stickers despite the fact I'm 23 not 5 years old!
At 10.30am Emma and Emily arrived and both took a shine to John, like me, they thought he was hilarious and we spent far too long doing my medication just so he could chat to us! At 12ish dad arrived with some croissants for Emma and Emily and a full roast dinner from the canteen for me! I had decided that I wanted my first roast dinner as I'd been craving one for weeks and surprisingly the hospital canteen did a nice one!
With the weather not looking too bad I decided that I would like to go for a trip to the great outdoors in my wheelchair, baring in mind I hadn't breathed in fresh air for a total of 40 days! I had been confined to the hospital and its air conditioning system all that time! John agreed Emma and Emily could take me out so they wrapped me up in about 6 layers plus 3 blankets for my first outing! Our enthusiasm wasn't even knocked when we saw it had started to drizzle in the time it'd took to get ready, it just meant we had to go to one of the sheltered entrances! As the automatic doors opened I got a good blast of northern air and breathed in with relief! The wind whipped around my face and I shut my eyes in appreciation of this wonderful air filling my new lungs, taking those deep breathes was one of the first moments I started to feel the benefit of them.
|Fresh air time!|
Monday morning I woke up with the blues, the weather was awful and I guess I was on a bit of a downer being back on my own after the wonderful visit all weekend from my friends! Mum soon sorted me out with some pampering! I had to have a session of intermittent dialysis that afternoon which lasted 3hours, they took off a litre and a half of fluid and amazingly did a 500ml wee straight after it had finished, this was super news as it meant my kidneys were returning to normal function! We found out from my blood levels that I had low iron and that it would be monitored so they could decided whether to give me a blood infusion or just an iron infusion. Dad had been and bought scrabble so the 3 of us, me, mum and dad, sat and had a game that evening which mum won by miles before we called it a night!
Filming re-started in full force on Tuesday with lots of interviews asking about what had happened over the last 6 weeks (we hadn't allowed any filming in ITU) and how I was feeling now! My doctor visited me with good news that my kidneys were doing well still but he felt that this week it was important to do a bronchoscopy and biopsy to check for rejection and infection. We decided the sooner the better so I was scheduled in for the next day! My sister arrived by train later that evening but I didn't see her until the next day!
I had an absolute barrel of laughs on the 1st of April with it being April fools day of course! I played numerous pranks on both the nursed and my sister! I went for my first lung function test post transplant which was both nerve wracking and exciting! I had to breathe into a machine as fast as I could for as long as I could 3 times to get an average %. My % had increased slightly since pre tx but my X-ray was showing I had fluid gathered in the bottom of my plural cavities that stopped complete expansion of my lungs and so as the fluid gradually reabsorbed into my body I was told my lungs would inflate bigger and bigger improving my lung function substantially. My bronchoscopy went well, I was awake throughout but in a woozy state from the slight anaesthetic they gave me! I got to see photos of my new lungs and where the connection was, it looked all pink and well healed!
I awoke to blue sky and sun on Thursday with my first thought being, more fresh air! I was visited firstly by my doctor with great news to start the day, my bronchoscopy results showed no infection or rejection, all captured by the film crew! My mum dad and sister then arrived with brunch which we enjoyed before finally wheeling me out of the hospital for more fresh air! They took me on a nice little ride around and I had this lovely photo in front of the first spring daffodils!
|Katy, myself and my dad!|
When my sister arrived on Friday she had come via the train station to pick up her boyfriend Nile who had also come to visit me, she walked in asking 'Do you want to build a snowman?', 'YES!' I said and out from behind the door popped a massive Olaf balloon! I was grinning from ear to ear and couldn't stop giggling he was fantastic!
|Me and Olaf loving life!|
Another weekend had come around and this one also bought promise of new faces! 4 of my closest friends were coming up for the day on Sunday and I had decided to ask one of them to go to my house to get me some clothes and my make up and I'd only packed pyjamas and jogging bottoms in my transplant bag! So after spending half an hour on the phone with pictures of my wardrobe being sent and me choosing clothes I was satisfied Ginny would bring all I needed! Katy and Nile spent the day with me whilst mum and dad got a much deserved day off and went out for lunch together. Me and Katy crocheted again and Nile read the papers then we had a game of cards called 'shithead' which I won every time so was luckily never declared shit head haha!
On sunday my dad arrived at 8am to help with my tablets and breakfast, Katy, Nile and my mum arrived at 11ish with a lovely picnic breakfast, warm croissant, ham, cheese, jam and fresh fruit! My sister then helped me get ready for the arrival of my friends! At an impressive 1pm, (it's over a 3 hour drive) Ginny, Robyn, Annie and Mark arrived to see me! My mum, dad, Katy and Nile left us to it and went to the coast for the afternoon! I had a lovely afternoon with the girls and Mark, they'd bought me gifts and my clothes from home! It was a lovely blue sky and sunny day so we went on an adventure around the hospital grounds to make the most of it!
At 6.30 my lovely group of friends had to leave to hit the road and get back home! My sister and Nile arrived just after they'd left with my dinner, chicken curry again! I made the most of my evening with them as they were leaving in the morning and had told me it would be quite a while before they could visit me again! By 9pm I was exhausted after such a busy day and settled into bed ready to sleep by 10! I felt so positive about my first week back on the ward and knew that the only way things would continue was upwards!
|Having a wander around my room!|
Dad returned to see me after his day out to keep me company whilst Nile and Katy went to cook a curry for us all for dinner! It was delicious! Afterwards we had a game of scrabble...
|Intense scrabble game!|
|Me and my girls! (Annie, Robyn, me, Ginny)|
|squinting in the super bright sun!|