Always Have Hope

Hello everyone, I hope you are all looking forward to tuning in tonight to my episode of 'gift of life' at 10pm on channel 5! I excited if not a little apprehensive, I'm going to watch it with my parents! When I was asked to be part of the 'gift of life' I didn't hesitate to agree. From this blog and my youtube you can see how much I like to document my journey with cystic fibrosis and transplant so being given the chance for my entire journey to be filmed was a dream come true! It was at my second false alarm for my transplant that I was approached by the film crew and asked if I would be involved, they explained that they would like to come to my house to film my life as a pre-transplant person and then if my call was to come with in their window of filming they would like to film my journey. I agreed there and then and numbers were exchanged to set up the first day of filming. It was just a week later that Becky and Louise arrived at my house to film the ...

I can't believe I am 8 months post transplant today! The time since being home has flown by and life is busier than ever! I've not updated you all since my 6 month clinic in August so I will try to fill you in on the last 2 months events! September started well with me really getting back into my career as a hairdresser, I began to do lots of my friends hair both and home and in the salon one evening a week. I can't remember if I mentioned before but in July I started doing one evening a week training at Flappers and Gentlemen  to get back into the swing of hairdressing and polish my skills back up! It's been a wonderful feeling to get back into what I love and am most passionate about! When I had to give up work over 2 years ago I was devastated and it was horrible to lose my sense of purpose and the achievement you feel when you have a job. Aside from my one evening a week at the salon I have also set up my own mini design business Holly Rosanna Designs  to sell...

August has been a month of celebrating, with my 6 month transplant anniversary on the 17th and my 23rd birthday on the 19th I had plans to celebrate in style! With a huge help from my sister, I arranged a murder mystery circus themed party to be held on the 15th of August! So I could play along, my sister took up the roll of host and organising of characters meaning I was as in the dark as everyone else as what the story was and most importantly who the murderer was! In the days leading up to my party, I gradually with the help of streamers, pompoms,  balloons, stripy table cloths and bunting was able to transform the downstairs of my house into a big top! I prepared the food of a circus, popcorn and pick 'n' mix along with cocktails in red cups! On the morning of my party I made the finishing touches to the decor and then began to get ready into my character 'Ruddy Bijou' a male trapeze artist. I managed to get a jazzy leotard from the top...

It felt so strange walking into the house, you know how everyones house has a smell but you can never smell your own because you live in it, well because we'd been away so long I could smell my houses smell! I guess it was a combination of the pine wood doors, washing powder and reed diffusers dotted around the place, whatever is is though it smelt good! We wandered around the house  like we were viewing it for the very first time! Despite neighbours and friends going in it everyday to look after it, it still echoed and felt un lived in. There was a HUGE pile of post, even more wonderful 'get well' cards and even some gifts! The bills and other boring letters not so well received!  Thumbs up I'm home! All the post! Exhausted from the day I crashed on the sofa whilst mum prepared dinner and dad sorted out the spare room for me to sleep in. I couldn't go back into my bedroom until it had been deep cleaned due to the risk of my CF bugs being in there. I ha...