Saturday, 11 July 2015

A miracle review

It felt so strange walking into the house, you know how everyones house has a smell but you can never smell your own because you live in it, well because we'd been away so long I could smell my houses smell! I guess it was a combination of the pine wood doors, washing powder and reed diffusers dotted around the place, whatever is is though it smelt good! We wandered around the house  like we were viewing it for the very first time! Despite neighbours and friends going in it everyday to look after it, it still echoed and felt un lived in. There was a HUGE pile of post, even more wonderful 'get well' cards and even some gifts! The bills and other boring letters not so well received! 

Thumbs up I'm home!
All the post!
Exhausted from the day I crashed on the sofa whilst mum prepared dinner and dad sorted out the spare room for me to sleep in. I couldn't go back into my bedroom until it had been deep cleaned due to the risk of my CF bugs being in there. I had to have a brand new duvet, pillows and bedding, every surface needed wiping with antibacterial, the floor needed hoovering and mopping, it was a huge job that would take a good few days so in the meantime I was happy enough to be in the spare bedroom!

Cuddled on the sofa on my first evening home!
After a delicious meal of spaghetti bolognese I got settled in bed and oh my gosh was I in heaven. The bed felt like a cloud of puffiness and ultimate comfort, my body sank into the soft mattress and I enveloped myself in the thickness of the duvet. From firm plastic covered mattresses, scratchy sheets and a blanket in hospital to this, was utter bliss. As I shut my eyes that night to go to sleep I felt engulfed in happiness and luck and quite frankly I felt like I was already dreaming!

Ready for my first night sleep at home!
The next day I basked in bed so contented with this new reality. I was home and I had new lungs, I had done it, despite all the odds being against me I had survived and was finally beginning to flourish with every breath I took! This first day, the proper first day of my new life had to begin of course with a full english breakfast! As I sat at the table enjoying my bacon I looked onto the garden with shock, our lawn had become a meadow, once I finished eating I couldn't resist going out for a look even if I was still in my PJs!
The long and tufty grass!
It had grown up to my ankles and was so squishy!
 Do you know what, I can't even remember what I did that friday, it's rather a blur, I think I was just overwhelmed with being home and enjoying my own space again that it passed without me even realising. I was however keeping a big secret... my brother was travelling home that day from Austria and was due back in England on Saturday with plans of returning home to Leicester on Sunday, what he didn't realise was that I was also home! I was messaging him as if I was still in hospital and unfortunately still didn't know when I was coming home, he of course believed me and I kept all news of coming home off social media and only informed close friends and family. I wanted to surprise him that I was home as I'd promised him the last day I saw him before he flew back to Austria that the next time he saw me I'd be walking and in my own clothes but now I'd gone a step better I was doing both these things but at home! Me and my parents came up with a plan, we would tell him dad was home for the weekend to pick up some clothes for me and mum and mow the lawn and generally do a check on the house therefore he would be able to pick Joseph up from the train station on his return to leicester. So as dad went to pick him up from the station I went and positioned myself on his bed facing his door with my phone set to record! We heard the car pull up onto the drive and I sat there in excited silence! He and my dad carried his case up and Joseph opened his door to me yelling surprise in his face, he was so shocked and happy! After a big hug and hello we all made a roast dinner together and popped open a bottle of pink champagne!

enjoying my first roast dinner at home!
taking ages to open the champagne! 
Over the next couple of days we unpacked and started to sort though my cystic fibrosis medication I no longer needed. My Cf nurse came to visit me on the Monday and to take back all the drugs and equipment to the hospital! Then it was time to reorganise my cupboards with my new medications!
Old medications I no longer need!
It was lovely weather my first week back so I made the most of it sitting outside after being confined in a hospital for so long!
making the most of the sunshine!
I also got my hair done as it was in a awful state after being neglected for so long! It was so nice having it done properly and feeling pampered, I finally felt like myself again!

Having highlights!
My lovely friend Meg and teabag the dog doing my hair!
On Wednesday 22nd April I had to pack my bag again and head back to newcastle for my first clinic appointment! It was strange to be going back but I was looking forward to seeing my team and showing them how much I'd improved in just a week of being home!
On the way to clinic.
My doctors were so pleased with me, I'd already put weight on and my lung function had increased! They told me how amazingly I'd done to survive what I did because everything that could have gone wrong basically did and yet I made it through it, they said it was a miracle and despite all the medical help I had it was my determination and positivity that made me survive where others wouldn't have. It made me feel really proud to hear this from my doctor and thankful for the incredible support I have from my family and friends that enable me to have that important mindset! I am so very lucky. 

On Friday 24th April my new outdoor healthy lifestyle began with my first bike ride! It had been over a year since I'd been able to ride my bike so I was super excited! I managed 3k with a little help from the optional electric power on my bike! It was a start towards much greater things...
First bike ride.
Over the next week the door bell went every morning with a delivery, I recieved 3 beautiful bouquets from Imogen, Siobhan and Ginny & Mark. I also was given a welcome home cake made by Imogens very talented sister! I was utterly spoilt!
Imogens bouquet
Welcome home cake from Imogen
Ginny and Marks bouquet
Siobhans bouquet
On Sunday 26th April I was finally reunited with my goddaughter Isla after 3 months apart! It was such a wonderful afternoon, the sun was shining so we played in the garden, we did running races, bounced on the trampoline, played tennis and catch! So much fun and such a giggle! Isla was so happy I have new lungs because it means I can run now, play properly and pick her up from school! The domino effect of happiness from my transplant is phenomenal!

On 27th April channel 5 film crew came to film me for the final time. They wanted to show how my life has been changed and improved by transplant, we filmed me making a youtube video (yet to be published) riding my bike and an interview on my swing. It was a really special day for us to film this last part of my transplant journey, documenting the miracle of it. I felt sad the experience was over as Becky and Louise had become a big part in my life over the time I spent in hospital, they weren't just a film crew they were my friends! The next time I would see them would be to view the final cut of the documentary in June! 
Becky, Louise and myself! 
I got my wish of being home in time to vote in the general election for the first time 7th May 2015. I ran down to the polling station and proudly made my vote. Unfortunately the election result wasn't the one I wanted but at least I did my bit in voting so have the right to moan if I do disagree with the government!

On May 12th I attended my 2nd clinic at the freeman, this clinic marked 3 months since transplant so I had to have the routine 3 month bronchoscopy and biopsy to check for infection or rejection. I had to stay in overnight as I'd had minor sedation for the procedure and they also have to keep an eye on you for 24hours after in case of bleeding or lung collapse which are potential risks as a result of the nature of the procedure. They have to cut a tiny piece of lung tissue for the biopsy and this can trigger the bleeding or make a hole in the lung causing it to collapse. Luckily I had neither as an issue! I was slightly disappointed I wasn't allowed out of hospital for dinner for a few hours before returning to sleep but instead my dad being the superstar he is got me a takeaway from pizza express for me! Much better than hospital food!
After my bronchoscopy, feeling sleepy
Pizza for dinner! 
The next morning I had to wake up and get ready to leave the ward and go to clinic to recieve my results of the biopsy. I was absolutely thrilled to hear I had zero rejection and no sputum in my lungs. Below shows the x-ray of my transplanted lungs!
Xray of new lungs!
Whilst I was in the waiting area for clinic I met with Vicky and Derek who are the manager and chair of freeman heart and lung association sport team. With the transplant games scheduled for July/August 2015 I was determined to join the team and take part! After talking with my doctors they agreed that despite not meeting the 6month post transplant criterea I was allowed to take part in the games and they happily signed the forms allowing me to compete! The only condition was I took it easy and didn't do every event under the sun! So I signed up to do a 5k cycle and a 3k walk/run. I was welcomed to the team with the kit and all the information about the national transplant games, excitement was an understatement!
Celebratory meal before heading home! 
After clinic we went for a lovely meal to celebrate the good news of no rejection and being able to compete in the transplant games! As soon as I got home I couldn't wait to try on my kit, and felt so proud to be able to wear it! It was a great motivator in getting me out exercising and building up my lung function! The games are being held in gateshead July 31st to August 2nd, my parents and I are going up and staying in a hotel with the rest of the team and look forward to socialising with other trasnplantees and their families!
Freeman sport team kit
I had Clinic number 3 on 11th June, a simpler clinic that only took up the morning, x-ray, bloods and lung function plus a review with my doctor! All was fabulous so we managed to escape by lunchtime and went to the coast to make the most of the weather and have a picnic before we headed home!
X-ray gown
My parents walking on the beach
Enjoying the sunshine on the beach!
On the 20th - 24th June I started to feel extremely tired and had a reduced appetite as well as a slight wet cough and the sniffles. These are all signs of rejection or infection and so on the 24th I decided to ring clinic and ask their advice on what I should do. They asked me to go to my local CF clinic to get an X-ray and lung function and fax it to them for them to review and decide upon the next course of action. So on 25th I attended my CF clinic extremely anxious and upset to get to the bottom of my fatigue etc. My lung function was marginally down but was within the limits of what could be a stable lung function due to the difference in calibration between the Leicester machine and the Freeman machine. To be on the safe side, my transplant doctors asked me to go to clinic the following Tuesday 30th June to confirm my lung function on their machine. It turned out my lung function was stable and hadn't declined, the drop in my one at Leicester was as thought, due to variation in machines. It was such a relief to hear that and I was allowed back home without needing a biopsy to check for rejection which they would have had to do if my lung function had dropped. The conclusion was made that I had suffered the symptoms due to over doing it and not resting enough! I need to pace myself more which is hard when I'm such a doer and go-getter! 

Due to pre-made plans the last 2 weeks has been extremely busy but I am pleased to say I will be taking it easy this 2 weeks at the coast! I'm taking my bike with me and plan to train for an hour a day for my 5k event but apart from that I'm going to get my creative head on and get making things!

My next clinic appointment is 28th July,  just before the transplant games so I think we will end up staying the whole week in newcastle and maybe visit northumbria whilst we are up north! July is turning into a very happy month indeed!

Holly 
x


23 comments:

  1. I'm so happy for you Holly! I've followed your story for quite a few years now. I met my husband 7 years ago and he has CF. His team are telling him to start meeting with the Transplant team here in Sydney - a scary time, because he doesn't seem that sick for the majority of the time. I love that you are so positive and strong. You help me to deal with things when they get a little tough for him. Thank you so much for sharing what you've been through! You'll never understand the amazing impact that it has had on my life! Can't wait to see your next video! Do you know if this film crew will make a dvd or if it will be able to be viewed in Australia?

    ReplyDelete
    Replies
    1. NATURAL & EFFECTIVE TREATMENT TO SEIZURE: Our son has temporal lobe epilepsy, He has seizure and had a grand mal with rage episode (8 men to hold him down), Our son's seizure is constant throughout the day according to EEG results. We had used several medicine which include: 600 Epilem 100 topolex 150 Epitec X2 Daily Dopoquel and cilift, Keppra, Topomax lasted for about 3 days, but I put an end to that due to my son losing weight and being lethargic. I recently got dr williams herbal medicine,that's a natural medicine that cure my son Epilepsy with no side effect. It is an herbal medicine. it is a permanent cure and effective treatment of Epilepsy, for more info, you can contact Dr.William with this drwilliams098765@gmail.com for his product

      Delete
  2. Holly you are looking amazing in your photos! So happy for you that you are out enjoying life again. Best of luck in the Transplant Games, hope to see a blog post about it :D xx

    ReplyDelete
    Replies
    1. "Dear dr george, your product is by far the best plan for treating fibroids naturally...the practical step by step instructions and the detailed information regarding the real cause and how to treat uterine fibroids were a real eye opener. I started dr george medication after intense bleeding and pain which occurred during one of my rehearsals (I am a professional violinist).

      I was later that week diagnosed with 2 medium sized fibroids which placed an enormous pressure on my bladder. I was advised by 3 different doctors to undergo surgery to remove these fibroids as I was told that there was nothing I could do to shrink or stop their growth. Luckily, I ran into dr george by accident as I was searching for information on the net regarding my condition. I was so relieved to have found that surgery was not always the answer, that it can be dangerous and that uterine fibroid can return even after surgical intervention. In less than 4 weeks of taking dr george herbal portion and following his instruction, both of my fibroid had shrunk by 100% and the second ultrasound taken 7 weeks after I began taking dr george medication, had shown that both of these were completely gone. I also my periods became regular. and now am three months old pregnant, you can contact his email address on drgeorge2580@gmail.com for advice and for his product

      -- Kate Newbold

      Delete
  3. This is really a wonderful post.

    ReplyDelete
  4. Eternal Salon and Loft is conveniently located at 19063 Lake Road in Rocky River. At Eternal Salon and Loft we offer a broad range of beauty services including hair, skin, and nails. Our highly trained professionals will transform you and ensure that you are a show stopper everywhere you go.

    Salon In Lakewood Ohio
    Salon In Bay Village Ohio
    Salon In Westlake Ohio
    Salon In North Olmsted Ohio
    Salon in Rocky River

    ReplyDelete
  5. Eternal Salon and Loft is conveniently located at 19063 Lake Road in Rocky River. At Eternal Salon and Loft we offer a broad range of beauty services including hair, skin, and nails. Our highly trained professionals will transform you and ensure that you are a show stopper everywhere you go.

    Salon In Lakewood Ohio
    Salon In Bay Village Ohio
    Salon In Westlake Ohio
    Salon In North Olmsted Ohio
    Salon in Rocky River

    ReplyDelete
  6. Cystic Fibrosis
    Today is the happiest day of my life, because the problems I have been battling with over the years are now solved. My wife died because she was suffering from Cystic fibrosis, I looked everywhere for a solution all to no avail, I was even told that it cannot be cured, I have even been scammed severally before I met a Man called Benson who put an end to the problem.I told all I have been through with my wife because of her illness of Cystic fibrosis If you are having such issue, contact him with this email drbenson833@gmail.com

    ReplyDelete
  7. I was diagnosed with Leiomyomas, 4 years ago and i was told it is a non cancerous tumor that occurs in the uterus of a woman. I never imagined i will ever have fibroid all my life because i was very healthy. I undergone surgery twice and it grew back. I was able to get a cure permanently from Dr. Aleta. Today i am permanently okay, do not be shy or live with it because i know the hell i passed through. Speak to her on aletedwin@gmail.com for professional advice and for also a cure to it. I hope this helps someone out there.

    ReplyDelete
  8. ALL THANKS TO DR WILLIAMS FOR GETTING MY WIFE OUT OF FIBROID WITH HIS HERB One of the greatest moments in this world is when you see your own wife put to bed, this awesome moments makes you a man and not just a man a real man. My wife suffered from Fibroid which made her unable to get pregnant and give us a child for almost 18 years with multiple surgeries done and none seemed to help the situation. I almost gave up but due to the love i had for her because i married her a virgin i had to find a way to help her. I told a member of my church who recommended Dr. williams to me, i contacted him and he sent me a medicine and this medicine shrinked it naturally in a weeks it was like magic but it's science. I am happy writing this because he delivered a baby girl. Do not loose hope too soon contact him on drwilliams098765@gmail.com and i am confident she will help you too.

    ReplyDelete
    Replies

    1. Why are you copying someone's testimony? stop editing their testimonies, it's embarrassing stop it.

      Delete
  9. ALL THANKS TO DR WILLIAMS FOR GETTING MY WIFE OUT OF FIBROID WITH HIS HERB One of the greatest moments in this world is when you see your own wife put to bed, this awesome moments makes you a man and not just a man a real man. My wife suffered from Fibroid which made her unable to get pregnant and give us a child for almost 18 years with multiple surgeries done and none seemed to help the situation. I almost gave up but due to the love i had for her because i married her a virgin i had to find a way to help her. I told a member of my church who recommended Dr. williams to me, i contacted him and he sent me a medicine and this medicine shrinked it naturally in a weeks it was like magic but it's science. I am happy writing this because he delivered a baby girl. Do not loose hope too soon contact him on drwilliams098765@gmail.com and i am confident she will help you too.

    ReplyDelete
  10. I got married to my lovely husband for the past 7 years without conceiving and fibroid was the issue, i took different prescribed medication but could not cure it but my husband was so confident in me and kept encouraging me that one day someone would call me mother, we did not rest searching for solution from different Doctors all they could say was surgery and i was afraid of that then a friend in my office introduced me to Dr. Davismartin who sent his product to me which i took and it really worked perfectly, and my Dr. confirm me pregnant after 2 months of taken his product. i gave birth to a BABY GIRL February this year and i will named her TESTIMONY. contact him also at drdavismartin62@gmail.com.

    ReplyDelete
  11. One of the greatest moments in this world is when you see your own wife put to bed, this awesome moments makes you a man. My wife suffered from Fibroid which made her unable to get pregnant and give us a child for almost 20 years with multiple surgeries done and none seemed to help the situation. I almost gave up but due to the love i had for her because i married her a virgin i had to find a way to help her. I told a member of my church who recommended Dr. lewishill to me, i contacted him and he sent me a medicine and this medicine shrieked it naturally in weeks it was like magic but it's science. I am happy writing this because she delivered yesterday a baby girl. in case you need his helping hand email him directly via his email,
    drlewishill247@gmail.com or add him on WhatsApp via this number +2348077210007.

    ReplyDelete
  12. One of the greatest moments in this world is when you see your own wife put to bed, this awesome moments makes you a man. My wife suffered from Fibroid which made her unable to get pregnant and give us a child for almost 20 years with multiple surgeries done and none seemed to help the situation. I almost gave up but due to the love i had for her because i married her a virgin i had to find a way to help her. I told a member of my church who recommended Dr. davismartin to me, i contacted him and he sent me a medicine and this medicine shrieked it naturally in weeks it was like magic but it's science. I am happy writing this because she delivered yesterday a baby girl. in case you need his helping hand email him directly via his email,
    drdavismartin62@gmail.com or add him on WhatsApp via this number +2348077210007.

    ReplyDelete

  13. It was January 2014. I was having major pain in my abdomen for months, I was to start a new job and was very excited about it. My job required me to work for 8hours of 24hours per day. On my second week of work, I began my cycle. I could tell right away this period was different, it started out really bad. One week went by and it kept getting worse and more heavy.
    In March, I received a diagnosis and was scheduled for surgery at the end of that month. On April 3, I had a myomectomy, removal of my Fibroids, That was a very difficult surgery which left me in excruciating pain, I developed complications with my breathing after surgery. After a year there was nothing to show as the fibroid kept growing back. But thankfully I’ve heard of Dr. Leonard's Herbal Medicine and decided to give it a trier to my surprise, I started to experience some changes within 3weeks of taking his medicine as my menstrual cycle was still a bit heavy but the color was lighter than usual, clots were moderate. I met with my doctor last week. We discussed the results from my fibroids and he didn't find any. You contact Doc. at drleonard288@gmail.com.

    ReplyDelete

  14. I am Matthias lang, from Orlando u s a, i was diagnosed with FIBROID for 6 years, i lived in pain with the knowledge that i wasn't going to ever give birth, i contacted so many doctors on this issue,and i have use so many western drugs prescribe by various doctors and all was no avail, because i was determined to get my life back, one day i was researching for this on internet and i saw a post about devansh herbal health care who cure different manners of diseases, including fibroid, I contacted them via email: devanshherbalheathcare@gmail.com and made purchase of the fibroid herb, i received the herb through USPS within 24 hours, when i received the herb i applied it as prescribed and i was totally cured of fibroid within 1 months of usages,and to god be the glory i give birth to a baby boy,and on thin now i have never experience any pain in my body again,few days later i went back to my doctor and he confirmed i was completely cured from fibroid, am so happy now, You do not have to suffer more just contact him for his medicine on devanshherbalheathcare@gmail.com.com he will definitely put an end to that problem of yours

    ReplyDelete
  15. I GIVE THANKS TO DR WILLIAMS FOR GIVING ME LIFE.
    He helped me with a fast cure to fibroid,and the size of it was .7cm, Then I started taking the medication for only one month, and now am completely cured from it. I was able to make it without any surgery, now I can live like every normal human and I can eat any food of my choice If you need such help, contact him via mail on drwilliams098765@gmail.com for advice,i hope this also help some one out there.

    ReplyDelete
  16. AM KAREN DISH BY NAME
    I GIVE ALL THANKS TO DR WILLIAMS WITH HIS HERBAL PORTION I WAS COMPLETELY CURED FROM FIBROID
    I can’t believe this. A great testimony that i must share to all fibroid patient in the world. i never believed that their could be any complete cure for fibroid with out going for surgery ,i saw people’s testimony on blog sites and Facebook page of how Dr williams prepare herbal cure for diferent king of disease,and with the help of his herb they where able to shrink there fibroid naturally. i had to try it too and you can,t believe that in just few weeks i started using it all my pains stop gradually . Right now i want to tell you all that i just give birth to a baby boy last month,and on thin now i have not had any pain, and i have just went for text last week and the doctor confirmed that there is no trace of any fibroid in my system . Glory be to God for leading me to this great Dr williams I am so happy as i am sharing this testimony. My advice to you all who thinks that their is no herbal cure for fibroid that is Not true ,just contact him and get cure from his email drwilliams098765@gmail.com and you will be free and free forever, Try it and you will not regret it because it truly works. i hope to see your testimony soon.

    ReplyDelete

  17. I GIVE ALL THANKS TO DR WILLIAMS WITH HIS HERBAL PORTION I WAS COMPLETELY CURED FROM FIBROID
    I can’t believe this. A great testimony that i must share to all fibroid patient in the world. i never believed that their could be any complete cure for fibroid with out going for surgery ,i saw people’s testimony on blog sites and Facebook page of how Dr williams prepare herbal cure for diferent king of disease,and with the help of his herb they where able to shrink there fibroid naturally. i had to try it too and you can,t believe that in just few weeks i started using it all my pains stop gradually . Right now i want to tell you all that i just give birth to a baby boy last month,and on thin now i have not had any pain, and i have just went for text last week and the doctor confirmed that there is no trace of any fibroid in my system . Glory be to God for leading me to this great Dr williams I am so happy as i am sharing this testimony. My advice to you all who thinks that their is no herbal cure for fibroid that is Not true ,just contact him and get cure from his email drwilliams098765@gmail.com and you will be free and free forever, Try it and you will not regret it because it truly works. i hope to see your testimony soon.

    ReplyDelete
  18. ALL THANKS TO DR WILLIAMS WITH HIS HERB MY WIFE WAS COMPLETELY CURED FROM FIBROID.
    Is my pleasure to comment on this site and i thank the admin of this site for his/her great work so far.one of the happiest moment in life is when you see your own wife put to bed.this awesome moments makes you a man, I really don't know how to thank DR WILLIAMS for helping my wife get cured for over how many year of suffering from FIBROID. i came across DR Williams contact through a headline news on internet about how DR Williams help a woman to get cured of his fibroid and so many other with similar body problem ,i contacted him and he told me how to get his herb,few day later he sent me the herbal portion which my wife take every morning for 21 days, and his medicine was able to shrike the fibroid naturally,and now my wife is 4months old pregnant for our second child, and now she very okay without any side effects whatsoever, If you have fibroid, you can contact him on his email address drwilliams098765@gmail.com for advice and for his product.

    ReplyDelete