It felt so strange walking into the house, you know how everyones house has a smell but you can never smell your own because you live in it, well because we'd been away so long I could smell my houses smell! I guess it was a combination of the pine wood doors, washing powder and reed diffusers dotted around the place, whatever is is though it smelt good! We wandered around the house like we were viewing it for the very first time! Despite neighbours and friends going in it everyday to look after it, it still echoed and felt un lived in. There was a HUGE pile of post, even more wonderful 'get well' cards and even some gifts! The bills and other boring letters not so well received!
|Thumbs up I'm home!|
|All the post!|
Exhausted from the day I crashed on the sofa whilst mum prepared dinner and dad sorted out the spare room for me to sleep in. I couldn't go back into my bedroom until it had been deep cleaned due to the risk of my CF bugs being in there. I had to have a brand new duvet, pillows and bedding, every surface needed wiping with antibacterial, the floor needed hoovering and mopping, it was a huge job that would take a good few days so in the meantime I was happy enough to be in the spare bedroom!
|Cuddled on the sofa on my first evening home!|
|Ready for my first night sleep at home!|
|The long and tufty grass!|
|It had grown up to my ankles and was so squishy!|
|enjoying my first roast dinner at home!|
|taking ages to open the champagne!|
|Old medications I no longer need!|
|making the most of the sunshine!|
|My lovely friend Meg and teabag the dog doing my hair!|
|On the way to clinic.|
My doctors were so pleased with me, I'd already put weight on and my lung function had increased! They told me how amazingly I'd done to survive what I did because everything that could have gone wrong basically did and yet I made it through it, they said it was a miracle and despite all the medical help I had it was my determination and positivity that made me survive where others wouldn't have. It made me feel really proud to hear this from my doctor and thankful for the incredible support I have from my family and friends that enable me to have that important mindset! I am so very lucky.
On Friday 24th April my new outdoor healthy lifestyle began with my first bike ride! It had been over a year since I'd been able to ride my bike so I was super excited! I managed 3k with a little help from the optional electric power on my bike! It was a start towards much greater things...
|First bike ride.|
|Welcome home cake from Imogen|
|Ginny and Marks bouquet|
On 27th April channel 5 film crew came to film me for the final time. They wanted to show how my life has been changed and improved by transplant, we filmed me making a youtube video (yet to be published) riding my bike and an interview on my swing. It was a really special day for us to film this last part of my transplant journey, documenting the miracle of it. I felt sad the experience was over as Becky and Louise had become a big part in my life over the time I spent in hospital, they weren't just a film crew they were my friends! The next time I would see them would be to view the final cut of the documentary in June!
|Becky, Louise and myself!|
On May 12th I attended my 2nd clinic at the freeman, this clinic marked 3 months since transplant so I had to have the routine 3 month bronchoscopy and biopsy to check for infection or rejection. I had to stay in overnight as I'd had minor sedation for the procedure and they also have to keep an eye on you for 24hours after in case of bleeding or lung collapse which are potential risks as a result of the nature of the procedure. They have to cut a tiny piece of lung tissue for the biopsy and this can trigger the bleeding or make a hole in the lung causing it to collapse. Luckily I had neither as an issue! I was slightly disappointed I wasn't allowed out of hospital for dinner for a few hours before returning to sleep but instead my dad being the superstar he is got me a takeaway from pizza express for me! Much better than hospital food!
|After my bronchoscopy, feeling sleepy|
|Pizza for dinner!|
|Xray of new lungs!|
|Celebratory meal before heading home!|
|Freeman sport team kit|
|My parents walking on the beach|
|Enjoying the sunshine on the beach!|
Due to pre-made plans the last 2 weeks has been extremely busy but I am pleased to say I will be taking it easy this 2 weeks at the coast! I'm taking my bike with me and plan to train for an hour a day for my 5k event but apart from that I'm going to get my creative head on and get making things!
My next clinic appointment is 28th July, just before the transplant games so I think we will end up staying the whole week in newcastle and maybe visit northumbria whilst we are up north! July is turning into a very happy month indeed!