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My first blog!

Hello Everyone! 

For a long time now I have been meaning to start a blog focusing on my cystic fibrosis and how I cope with living my life despite the challenges it gives me! So finally here I am with my first blog, I apologise for the look of it, I'm not a computer whizz and very good at photoshop or coding so this is the best I could do! If anyone fancies helping me out to make a more professional looking blog I would really appreciate it! 


Anyway on this blog I am to provide a place for people who are interested to read about the ins and outs of my cystic fibrosis, my bucket list adventures and my journey to getting a double lung transplant! 


I aim to educate, entertain and inspire through this blog, I hope you enjoy it! 


Holly 

x

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Sleeping beauty, or not!

After being re-ventilated on the Saturday morning 28th February, the doctors had a meeting with my parents explaining the seriousness of my situation and even suggested to them to call my brother who was working on a ski season in Austria and tell him to get the first flight to newcastle because of the high chance I wasn't going to survive. They were told my lungs were completely infected with pseudomonas along with a secondary infection of pneumonia and on top of that I had septicaemia. My X-ray showed my lungs were a total white out, my feet and hands were purple and frozen to the touch, my mum said I was like a corpse. Along with my struggling lungs my heart was at full stretch, I had now had a dangerously hight heart rate of over 170bpm for over 24hours. My mum, dad and sister took it in turns to be by my bedside constantly, holding my hand and talking to me, willing me to get better. Fully sedated. Mum holding my hand and talking to me while I'm sedated. By Sunday

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On the 19th February I was taken to the brand new transplant ward in the state of the art centre of transplantation, I was given my own room and en suite that could easily pass as an apartment it's that big! I still had 4 chest drains in and had an epidural to control my pain so I wasn't able to move from my bed except for the comode (toilet on wheels) due to all the wires and tubes! 4 chest drains, a central neck line and the dressing on my scar My epidural in my back for pain control I had daily physiotherapy sessions in which the aim was to restore my balance and regain muscle. I started off with marching on the spot, raising my knees nice and high and punching the hands of my physio or doing very gentle arm weights! Punching my physio with gusto! Despite working hard at my physio I was finding it hard to cough up the gunk from the operation and so it was decided to do a bronchoscopy to do a lafarge in which they flush out the lungs with saline and suck back an

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It felt so strange walking into the house, you know how everyones house has a smell but you can never smell your own because you live in it, well because we'd been away so long I could smell my houses smell! I guess it was a combination of the pine wood doors, washing powder and reed diffusers dotted around the place, whatever is is though it smelt good! We wandered around the house  like we were viewing it for the very first time! Despite neighbours and friends going in it everyday to look after it, it still echoed and felt un lived in. There was a HUGE pile of post, even more wonderful 'get well' cards and even some gifts! The bills and other boring letters not so well received!  Thumbs up I'm home! All the post! Exhausted from the day I crashed on the sofa whilst mum prepared dinner and dad sorted out the spare room for me to sleep in. I couldn't go back into my bedroom until it had been deep cleaned due to the risk of my CF bugs being in there. I ha